Biography
Alice Babolin, known by her stage name of Aliteia (Padua, 1985).
Aliteia’s journey stems from a long introspective research. This experimentation has increasingly led her to approach art as a vehicle of knowledge and transformation. She introduces herself to the art scene through her first solo exhibition at the Fabbrica del Vapore, which immediately grasped the thematic, conceptual and aesthetic value of her research.
Aliteia is derived from the words Ali and Aletheia (ἀλήθεια): the literal meaning of the word ἀλήθεια is “the state of not being hidden; the state of being evident.” It also entails a meaning of sincerity, such as factuality or reality.
Aletheia is the truth that cannot be hidden, that cannot be concealed. Therefore the artist is a guide, as the evolution of the self can be an effective and real process in giving us the courage to walk along our own path which represents us alongside our fragility and diversity that is part of our identity. Hence, fragility discovers a new narration, not as something that is ought to be hidden, but as the highest manifestation of art as an expression of self.
ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV is an organization established by people affected by Charcot-Marie-Tooth or CMT and those who support them. Founded in 2001, it is the reference point in Italy for information, education, patient support, research and spreading awareness for this disease.
CMT is the most common rare hereditary neuropathy. It affects motor and sensory neurons of the peripheral nervous system. Depending on the type of affected axons (which differ in the various forms of CMT), motor, sensory and/or automatic function are progressively impaired. Such impairment typically begins in the longer nerves and progresses over time, making affected patients develop weakness, loss of sensitivity, and/or automatic dysfunction initially in the feet and distal part of the lower limbs and then, in the hands. Clinical onset may occur early, in infancy or childhood, or later, during middle age.
Therefore, the genetic mutation that underlies CMT causes a change in the delicate balance of forces between the muscles and tendons of hands and legs, which often results in deformities to hands and feet, a characteristic symptom of this little-known disease.